The internet is a powerful resource for patient education. The following is a list of sites that may be of interest to our patients and website visitors. 

ESP - Some information available in Spanish

General Medical Reference Links

Emedicine Consumer Health
http://www.emedicinehealth.com/index.asp

In-depth consumer health site -- topics from A-Z.

Emedicine Consumer Health

Medline Plus ESP
http://medlineplus.gov/

Vast library of medical information; index of health conditions from A-Z. Complete site available in Spanish version:

Medline Plus en EspaƱol ESP
http://medlineplus.gov/esp

Medline Plus

Medem
http://www.medem.com/medlb/medlib_entry.cfm

Various medical academies and societies provide content for this informative site. For specific info on this site, click the links: Eyes  |  Ears, Nose, Throat, Head & Neck  |  Plastic and Reconstructive Surgery

Medem

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Ophthalmology (Eye) Links

American Foundation for the Blind
http://www.afb.org

This site provides a vast amount of information for people and families dealing with vision loss. Many links to local resources and tools. Also hosts an online store of educational DVDs and books.

American Federation for the Blind

American Behcet's Disease Association
http://www.behcets.com

Useful consumer resource for information about Behcet's disease. Includes links to other Behcet's disease resources and information regarding legislation and support network.

American Behcet's Disease Association

Eye Surgery Education Council
http://www.eyesurgeryeducation.com

Established by the American Society of Cataract and Refractive Surgery (ASCRS), this site contains helpful eye care glossary, frequently asked questions about cataracts, and in-depth refractive surgery section.

Eye Surgery Education Council

FamilyConnect ESP
http://www.familyconnect.org

Created by the American Foundation for the Blind, this site is a helpful resource for parents of visually impaired children. A wonderful selection of videos and personal stories, as well as an online message board. Website visitors can search through information based on age of the child.

FamilyConnect


Healthy Vision 2010
http://www.healthyvision2010.org/rehabilitation/#orgs

This site, sponsored by the U.S. Department of Health and Human Services, is an extensive resource for information about eye examinations & diseases, injury & safety and vision rehabilitation.

 


Healthy Vision 2010

Hot Braille
http://www.hotbraille.com

This leading portal for blind people is an industry innovator that offers tools for the visually impaired. Would you like to communicate with a blind person? Simply type a letter online and it will be translated into Braille (in one of 21 languages) and sent for free through the US postal service.

Hot Braille

Jewish Guild for the Blind
http://www.jgb.org

The Guild offers a broad range of programs that include: medical, vision,
low vision, psychiatric and rehabilitative services, managed long-term care, residential services, day health programs, schools and educational training programs for independent living. In addition, The Guild's radio reading service, InTouch Networks, and SightCare, its vision care education and training program, address the special needs of thousands of people
nationwide.

Jewish Guild for the Blind

National Eye Health Education Program
http://www.nei.nih.gov/nehep/

The goal of NEHEP is to ensure that vision is a health priority by translating eye and vision research into public and professional education programs. NEHEP supports collaboration among eye health professionals, healthcare providers, patients, and the public.

Jewish Guild for the Blind


National Eye Institute  ESP
http://www.nei.nih.gov

One of the Federal government's National Institutes of Health. Conducts and supports research to prevent and treat eye diseases and disorders. For health information about basic anatomy, diseases and conditions pertaining to the eye, visit the Health Information section of the site.

 


National Eye Institute

Prevent Blindness America
http://www.preventblindness.org

Information about eye safety, eye problems, and frequently asked eye questions.

Prevent Blindness America

Senior Site ESP
http://www.afb.org/seniorsite

Established by the American Foundation for the Blind, this site is geared towards seniors with eye conditions and their friends and family. Includes information about living with vision loss, fitness and fun, and links to regional services which can help. Also contains a large collection of informational and instructional videos.

Senior Site


Vision 2020 e-resource
http://www.laico.org/v2020resource/homepage.htm

A comprehensive collection of electronic resources in management of eye care. It aims at sharing resources relevant to eye care delivery for the development and implementation of efficient and sustainable eye care programs targeting particularly those in the developing countries.


Vision 2020 e-resource

Vision AWARE
http://www.visionaware.org/

A “Self-Help for Vision Loss” web site that provides free, practical, hands-on information to enhance quality of life and independence for adults with vision loss, their families and friends, and related professionals.

Vision AWARE

VisionServe Alliance
http://www.agenciesfortheblind.org

Previously Known As National Council of Private Agencies for the Blind and Visually Impaired (NCPABVI). Provides comprehensive list of resources for blind/ visually impaired across the country.

VisionServe Alliance

Web Accessibility In Mind (WEBAIM)
http://www.webaim.org/techniques/visual/

A good source for internet-browsing techniques for people with visual impairments. Includes information about screen readers, magnifiers, and other tools.

Web Accessibility in Mind (WEBAIM)

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Otolaryngology (ENT) Links


Alexander Graham Bell Association for the Deaf
http://www.agbell.org/

Provides an abundance of information related to hearing loss in children and adults. Topics include early identification checklists, speech therapy and rehabilitation, advocacy and legal issues, as well as general information and facts.


Alexander Graham Bell Association


American Academy of Audiology ESP
http://www.howsyourhearing.org/

A good resource for information about hearing. Topics of consumer guides include: What is Hearing Loss?, Understanding Your Audiogram, How to Purchase Hearing Aids, and more... 


American Academy of Audiology


American Academy of Otolaryngology ESP
http://www.entnet.org/index2.cfm

A thorough resource for general and specific diseases/conditions pertaining to the ears, nose, throat, and head and neck.


American Academy of Otolaryngology


American Speech-Language-Hearing Association (ASHA) ESP
http://www.asha.org

Information about communicative disorders affecting children and adults. (Limited amount of material available in Spanish)


American Speech-Language-Hearing Association


American Thyroid Association
http://www.thyroid.org/

Information about thyroid conditions, support organizations, and recommended reading materials.


American Thyroid Association


American Tinnitus Association ESP
http://www.ata.org/

Information about Tinnitus research and advocacy programs.


American Tinnitus Association


National Association of the Deaf (NAD)
http://www.nad.org

This advocacy group provides deafness-related information, legislation news, and programs. Of particular interest is the Described and Captioned Media Program ESP, which allows deaf or hard of hearing persons to borrow captioned movies for free! The American Sign Language Teachers Association is also a part of NAD.


National Association of the Deaf (NAD)


National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse ESP
http://www.nidcd.nih.gov/

National Institutes of Health (NIH) site offers general information and facts related to hearing, balances, smell, taste, voice, speech, and language disorders. There is also detailed information listed about research trials.


National Institute on Deafness and Other Communication Disorders (NIDCD)


Self Help for Hard of Hearing People (SHHH)
http://www.hearingloss.org/

National support organization provides information on regional chapters, legislation news, library archive of article related to hearing loss. Downloadable fact sheets available.


Self Help for Hard of Hearing People (SHHH)

Vestibular Disorders Association ESP 
http://www.vestibular.org

Facts and information about balance disorders, including educational literature, clinical studies, other supportive resources


Vestibular Disorders Association

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Plastic Surgery Links


American Society of Plastic and Reconstructive Surgeons ESP
http://www.plasticsurgery.org

Facts and information about types of surgical and reconstructive procedures. Includes photo gallery, general issues related to plastic surgery.


American Society of Plastic and Reconstructive Surgeons

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Patient Safety Links


Agency for Healthcare Research and Quality (AHRQ)
http://www.ahrq.gov/consumer/

Provides materials that help patients choose wisely when making important health care decisions. Information on how to help prevent medical errors, and how to take steps to safer health care. Also provides health information.


Agency for Healthcare Research and Quality


Joint Commission on Accreditation of Healthcare Organizations (JCAHO)
http://www.jcaho.org/general+public/index.htm

Joint Commission evaluates the quality and safety of care for more than 15,000 health care organizations. This site contains informational guides on how to make better health care choices, and prevent medical errors. Search for accreditation status of institutions, view National Patient Safety Goals, learn about patient safety initiatives.

Speak Up Initiative: Planning Your Recovery offers patients tips for continuing recovery after leaving the hospital - download the brochure in English or Spanish.


Joint Commission on Accreditation of Healthcare Organizations (JCAHO)


National Council on Patient Information and Education (NCPIE)
http://www.talkaboutrx.org

One of the original patient safety coalitions, NCPIE works to advance the safe, appropriate use of medicines through enhanced communication. Site contains information about medications and immunizations, and contains a list of resources to topics such as dietary and herbal supplements, antibiotics, prescription assistance programs and purchasing medication on the internet.


National Council on Patient Information and Education


National Patient Safety Foundation (NPSF)
http://www.npsf.org/for-patients-consumers/

The National Patient Safety Foundation is the indispensable resource for individuals and organizations committed to improving the safety of patients. The site contains tips for consumers to improve patient safety and information on how patients can get involved to improve the safety of health care.


National Patient Safety Foundation


Premier Safety Share Newsletter
http://my.premierinc.com/all/safety/publications/

Premier Safety Share is a free, electronic newsletter distributed by the Premier Safety Institute to provide members, business partners, hospitals and the public with timely safety-related information, news and resources. The goal of Safety Share is to enhance and promote a safe health care environment.


Premier Safety Share Newsletter

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